Haemophilia

Our Haemophilia Centre cares for children and young people with a range of bleeding disorders. Children come to the centre from the South Yorkshire, Lincolnshire and Humber areas.

We are a UKHCDO recognised paediatric haemophilia comprehensive care centre (CCC) as well as being a EUHANET designated European haemophilia comprehensive care centre (EHCCC).

Our aim is to promote self-management and independence for children with haemophilia and other bleeding disorders, as well as provide practical and emotional support for patients and families.

We work alongside other healthcare specialities such as Physiotherapy, Dentistry, Psychology and Genetics services to provide holistic care as much as possible. We also have close links with other Haemophilia Centres including those at Sheffield Teaching Hospitals, Lincolnshire and Hull.

Our haematology nurse specialists also provide a community service to patients for giving treatment and blood sampling.

Opening hours and clinics

The centre is open Monday to Friday 9am-5pm and closed at weekends and bank holidays. There is an out of hours service for urgent clinical problems which can be accessed via the hospital switchboard on 0114 271 7000.

• Haematology consultant clinic: every Monday 2pm-4.30pm
• Nurse-led prophylaxis clinic: second and fourth Friday of each month 10am-12pm
• Nurse-led telephone clinic: alternate Tuesdays and Thursdays 4pm-5pm

Out of hours service

The out of hours service for patients with bleeding disorders is delivered from Ward 6. We also aim to admit patients to this ward if required.

Patients can bypass the Emergency Department and go straight to Ward 6 if they need medical assistance related to their bleeding disorder outside of the normal service hours.

It is advised that you call the ward on 0114 271 7322 before attending so they can prepare for your visit. Medical care for children and young people with bleeding disorders will be directed by a paediatric haematology consultant.

It is strongly advised that patients who are suffering from severe head trauma, loss of consciousness or any other life threatening medical problem should go directly to their nearest A&E for emergency medical review. Please tell the staff that your child has a bleeding disorder so that the medical team can contact the haemophilia consultant at Sheffield Children’s Hospital for advice.

Useful links

The Haemophilia Society – UK-based charity for patients/families with bleeding disorders

World Federation of Hemophilia –  the World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world

United Kingdom Haemophilia Centres Doctors’ Organisation – the UKHCDO is an association of medical practitioners who work within the Haemophilia Centres of England, Scotland, Northern Ireland or Wales and have an interest in the care of people with haemophilia or other inherited bleeding disorders

European Haemophilia Network – provides details of Haemophilia Centres based in Europe for travel purposes

PALS and service feedback

If you would like to share any feedback about the service, either positive or negative, you can contact us at scn-tr.haemonc_secretaries@nhs.net.

Alternatively, you may wish to speak to a member of the PALS (Patient Advice Liaison Service) team on 0114 271 7594.