Currently recruiting

We are looking for boys aged 7-13 to take part in a research study called ‘Vibration in boys who have a history of fracture’.

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Health status in Children and Young People with Congenital Adrenal Hyperplasia (CAH)

We are running a research project to look at the health of people with a condition called Congenital Adrenal Hyperplasia (CAH). We also want to develop novel tests that help these people to manage their condition better. We are looking to recruit healthy children and teenagers aged 8 to 18 years. As part of the study, we will collect a saliva and a blood sample.

We are paying parents/guardians of volunteers up to £40 in travel expenses and giving children a £20 high street voucher as a thank you.

If you are interested in finding out more about this study please contact Dr Nils Krone on 0114 2717508 or email n.krone@sheffield.ac.uk.

For further information you can also contact the national study coordinator Sundus Mahdi on 0114 3053875 or email sundus.mahdi@nhs.net.

As a result there are many reputable institutions dedicated to researching encephalitis and its consequences. The primary aims of such research are usually to minimise, and where possible, prevent deaths from the condition, as well as to reduce the unwanted outcomes resulting from the subsequent damage to the brain.

Research in recent years has led to the discovery of new causes; the invention of treatments that can reduce death and injury to the brain; diagnostic and management algorithms to aid diagnosing and treating clinicians; as well as improved understanding of the outcomes for patients and how best to manage them.

The Encephalitis Society supports research into encephalitis and often contributes to, and is involved in studies, led by leading academic and medical institutions. This means we can ensure the voices of those affected are represented before, during, and after a study takes place.

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The ARCHIE Study: The early use of Antibiotics for 'at Risk' CHildren with InfluEnza

Recruitment re-opens October 2017

If your child is aged 6 months to 12 years and has a long-term condition or was born prematurely, you and your child may be eligible to take part in the ARCHIE Study if your child gets a flu-like illness this winter.

Conditions include:

• asthma
• diabetes
• cerebral palsy
• immune system conditions
• Down’s syndrome
• heart, kidney or liver problems
• premature baby

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We are recruiting children and adult patients with one of several Newborn Screening (NBS) disorders.

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Who can take part

Children and adolescents may be eligible to participate in the LINK Study, provided the following criteria are met:

• be between the ages of 2 and 17 (inclusive)
• have been diagnosed with Osteogenesis Imperfecta Type I – IV
• have a specific fracture history (to be discussed with/determined by your doctor)

There are other eligibility requirements to be reviewed with the study doctor. Only the study doctor can determine whether an individual is eligible for the study or not.

Taking part

The study staff will present a document that provides all the details about the study. This document is called an Informed Consent Form. People considering the study should make sure to read it carefully and ask questions about anything they do not understand. For example:

• what procedures are involved in the study?
• how long will the study take?
• what happens if I want to stop participating?
• what side effects are associated with the investigational product?
• what other therapies are available to treat my medical condition?

Further information

For further details contact Kate Jones, Paediatric Research Officer on 0114 305 3171.

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If the answer is yes, our local BADBIR team would like to hear from you!

For further information or to discuss your eligibility to participate, please ask your dermatologist or specialist nurse about BADBIR.

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TrialNet screens relatives of people with type 1 diabetes. They have a 15 times greater risk for developing the condition than people with no family history.

Who can take part

We can screen you for the Pathway to Prevention Study if you are:

• 3 to 45 years old and have a brother, sister, child or parent with type 1 diabetes, OR
• 3 to 20 years old and have a cousin, aunt, uncle, niece, nephew, half brother, half sister or grandparent with type 1 diabetes

The test

A small sample of blood is taken from your arm. The blood is tested for autoantibodies which are markers that show if the immune system is turned on.

You can have blood test at a TrialNet site or TrialNet can send you a test kit. You take the kit to your doctor or local lab to have your blood taken and then send it to TrialNet. We will have the results in 4-10 weeks.

Positive test

Testing positive means you are at greater risk than if you tested negative. We will ask you to join the monitoring part of the natural history study. You will come in once or twice for blood tests and we may invite you to join other studies testing ways to delay and prevent type 1 diabetes.

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For more information about TrialNet call Lynda Viles on 01143 053234 or visit the TrialNet website.